Rare Disease Review is a medical & health policy journal focused on providing detailed discourse on rare diseases and their societal effects that anyone can understand.
Patient groups, non-profits, clinicians, and individuals can now benefit from Rare Disease Review's years of experience in rare disease knowledge translation. Our goal is to make sure you completely understand a particular rare disease, class of diseases, or public policy, no matter your level of scientific understanding.
At Rare Disease Review, we know that the first step towards becoming an effective patient advocate is to understand your rare condition. Our team will work with you in a one-on-one setting to assess your exact needs. Once we've identified your goals, we'll present you with a complete understanding of a rare disease of your choice, complete with the latest research and a list of key people & organizations, catered to your level of scientific expertise.