Rare Disease Review's mission is simple: to empower patients and their families by providing knowledge and understanding of orphan diseases and health policies. Over the past three years, we have developed and curated a fantastic team of volunteer writers, editors, and illustrators to do just that.
In the past year, we have taken huge steps towards reaching our goal of becoming the key resource for intellectual discourse on the pathology and health policy issues of rare diseases. Along with initiating the development of a rare disease research scholarship, we have actively collaborated with several paediatric hospitals across Canada to fulfil their knowledge translation needs. In October 2018, we will be hosting our first rare disease knowledge translation conference in Toronto.
Whether you are a rare disease non-profit, a healthcare organization, or a business looking to outreach to students, becoming a sponsor is a great way to support our shared vision. It’s not easy to provide detailed information on such complex topics in a way anyone can understand, but with your help, our volunteers, who have so generously donated their time, can continue to focus on providing valuable knowledge with intellectual and journalistic integrity.
Thank you for taking the time to consider Rare Disease Review. We hope that our work inspires a sense of curiosity and hope, and informs you about the conditions that affect 1 in 12 Canadians and over 300 million people worldwide.